12/15/2003 4:01:04 PM
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Umm, that's not a bad idea but before
that it would be nice if we could get a
different posting board of some sort.
These boxes fill up so fast and they
work kind of weird some times when you
want to edit them. I think an easier
way to post and read would be more
helpful to the people here.
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12/15/2003 4:12:08 PM
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Craig
Well I guess if you had the
technology, you could classify a post
with a dropdown menu such as
treatment, personal story, help!,
news, etc. that way people who aren't
on every day can sort what they need
to see. Let me think about it some
more.
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12/15/2003 4:12:47 PM
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hpvfaq
alright, i'll work on fixing that.
i've tried to keep these boxes small
because i wanted message board convo @
http://www.hpvsupport.com
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12/15/2003 4:14:07 PM
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hpvfaq
everything on this site is custom
written. i can and will add anything
that will help new and existing
visitors.
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12/15/2003 4:18:00 PM
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hpvfaq
great ideas.. i think as you've
suggested Craig, classifications
would be very useful.
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12/15/2003 5:08:49 PM
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AK
I am in agreement with new
classification and different reply
boxes they are really hard to work with
at times.
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12/15/2003 6:03:54 PM
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Beth
A broader 'Optimistic Links' section
would be great. I know the links and
other info that people post here should
probably be moved to that area.
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12/15/2003 6:21:58 PM
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um also a BATTLE PLAN section for the
HPV NATION so we can post the names
and addresses of the groups and people
that we need to be mailing and
harrasing to get us some
cure/vaccines! and a place to order
HPV NATION Tshirts!
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12/15/2003 7:07:56 PM
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I was the first post but I wanted to
say "thanks". You have no idea how
much better this board and these posts
have made me feel going through all
this. I felt all alone now I at least
feel somewhat normal now again. So
biggest "thanks" to whoever is in
charge!!
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12/15/2003 7:22:36 PM
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Actually, this place seems to get more
traffic than HPVsupport.com...it would
be cool if everyone here posted there
instead since that has the actual
message board.
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12/15/2003 7:28:49 PM
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I double the thanks! Also, I second the
call for the HPV NATION section.
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12/15/2003 7:49:57 PM
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hpvfaq
alright, i've seen a few people
mention this idea.. can someone send
me some examples of what would be in
the section. would people wear a
tshirt that says hpv? send more info
via the feedback box at the very
bottom of this page. thanks.
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12/15/2003 8:09:17 PM
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I think that Battle Plan guy is just
joking..I dont' think anyone is going
to start an HPV army or wear an HPV t-
shirt around town.
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12/15/2003 8:28:10 PM
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drewtang
OK Maybe my idea of the HPV nation is
sounds like a joke to some of you.
And maybe I am joking I dunno if I'd
have the balls to wear a T shirt or
whatnot. But the fact remains
Awarness needs to be raised, and the
FDA needs to know the we are hear and
we want a solution. When I first got
HPV I was shocked. Then I was sad and
angry. Now I'm tired of worring about
weather or not it leaves the body over
time, and all the other questions we
have. continued...
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12/15/2003 8:35:53 PM
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drewtang
But maybe we could figure out ways to
push this vaccine along, raise money
for studies to find out if for sure it
ever does become non contagious, stuff
like that. I mean just raising
awarness about HPV would be great.
Look at how many doctors don't know
the ins and outs of it! I'm sorry but
all I know is I'm not willing to sit
at home and worry about weather or not
tea tree oil works. I want to get to
a livable solution. who's with me?
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12/15/2003 8:37:43 PM
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drewtang
and I know I spell like a 3rd grader.
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12/15/2003 10:31:00 PM
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Julie
Maybe break it up- Im sure it would be
difficult to organize the personal
experiences- maybe a treatment page or
something to make it easier to find an
experience by topic. Maybe that sounds
dumb :)
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12/16/2003 1:33:19 AM
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Maggie
I remember when this section was just
people's individual experience stories.
I feel that it is more of a question
and support board now which is good. I
think it's better than the FAQ section
because you can respond and ask more
questions. Is this section used more
than the FAQ part? Also, I think that
it is important to have an actual
experience board because it really
helped me when I was learning to cope.
Reading them helps to see where you
stand in the HPV world.
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12/16/2003 1:39:09 AM
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Maggie (cont.)
It is easy to believe that you're
really bad off when you first find out,
so reading others' experiences is an
eye-opener. I learned a lot when I read
them, and I found that I was really
lucky. Plus, you see that it's not just
promiscuous people who become infected:
even virgins get it! Bring it back.
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12/16/2003 1:42:38 AM
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I just like this style vs the other
boards
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12/16/2003 3:13:06 PM
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I second the above -- this style is lot
easier to read than the board at
hpvsupport.com
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12/16/2003 3:24:10 PM
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No way, this is much harder read. You
can't post more than like 3 sentences
in the boxes and editing them is all
messed up. Plus it's hard to tell if
new posts have been added unless you
memorize the number of posts in each
thread. With the other board, hte
posts with new additions float to the
top automatically.
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12/16/2003 7:17:47 PM
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hpvfaq
that's the dilemma here..
short and sweet.. vs more length message boards...
this style was so users could get
quick bits of good info.. making for
easier reading.. im going to add
categorization and improve the
functionality of these 'add comment'
fields so that they work better for
everyone.
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12/16/2003 7:20:48 PM
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hpvfaq
on hpvsupport.com i have the settings
so you dont have to register.. so it's
anonymous if you want it to be.. i
think the fact that this comment box
doesnt require any registration or
time delay encourages people to post..
and we've had some great posts and
comments.
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12/16/2003 7:22:34 PM
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hpvfaq
yet at the same time.. without
registration the community doesn't
really get built.. since people are
just kinda guessing who's who or if
they've talked before.. i notice some
people are using original poster, or
the same names throughout their
comments.. which makes me think this
is lacking some features. i appreciate
this feedback, please keep it coming,
i want to make this the best site on
the internet for the hpv community.
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12/16/2003 11:27:16 PM
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DrM
It is the best site on the
internet! :) Thank you!
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12/17/2003 2:49:43 AM
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cf
Definitely worth having different
headings you can click on, like
Emotional Support; Sex and
Relationships; Treatments;
Miscellaneous Comments/Questions etc.
That way you can narrow down the info
you want to look at.
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12/17/2003 7:59:15 AM
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What about having email accts at
hpvfaq.com or something? is that
possible? That way then people dont
have to put up their hotmail email
addresses. If everyone registered and
we had an email directory....
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12/18/2003 10:29:04 PM
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Julie
The above poster has an excellent
idea!!
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12/18/2003 11:18:02 PM
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Well the board at www.hpvsupport.com
has private messages which if you login
it's very similar to email.
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